May 20 2011
Chosen Charity
We’re Here to Help
Are you looking for ideas to organize a charity fund-raising event with a difference?
Or just want to join in with investigations, whilst helping a worthy cause.
Proud to have assisted in raising money for many national & local charities, we are happy to continue as always, to help host an event for you, within your requirement.
As well as helping our community by supporting local charities and events through our chosen charity scheme, or, if they prefer, to a charity of their own choice.
Hope Tameside (Hope for Paediatric Epilepsy)
Learn more about this remarkable charity in which we support
What Is Epilepsy?
Epilepsy is the most common neurological condition defined as a tendency to have recurrent seizures (sometimes called “fits”). Seizures are caused by a sudden burst of excess electrical activity in the brain, causing a temporary disruption in the normal message passing between brain cells.
This disruption results in the brain’s messages becoming halted or mixed up – as the brain is responsible for all the functions in your body, what you experience during a seizure will depend on where in your brain the epileptic activity begins and how widely and rapidly it spreads. For this reason, there are many different types of seizure and each person will experience epilepsy in a way that is unique to them.
This support group is run by the parents of children with Epilepsy and Carolyn Taylor, a Paediatric Epilepsy Specialist Nurse at Tameside General Hospital.
The group gives them an opportunity to build relationships, share and gain knowledge from others who may or had similar experiences.
It can also helps to build confidence and provide mutual support through contact with other parents.
“The family support group has gone from strength to strength over the last year. This would not have been possible without the dedication of the committee members of HOPE” – Carolyn Taylor Tameside Hospital
New cases of epilepsy are most common among children, especially during the first year of life. The rate of new cases gradually declines until about age 10, and then becomes stable.
The death rate among people with epilepsy is two to three times higher than the general population and the risk of sudden death is 24 times greater.SUDEP have suggested that the person may suffocate from impaired breathing, fluid in the lungs, and being face down on the bedding.
Because SUDEP typically happens at night, anxiety and fear of being alone and helpless during a nocturnal seizure may compromise sleep quality in patients with epilepsy, thus increasing the likelihood of seizure activity.
So it seems that for many epilepsy patients there develops a cycle:
fear of nighttime seizures = insufficient sleep = increased seizure activity.
All proceeds raised will be used to provide respite to families in the way of short breaks/day trips, and also to help the group offer grants to families to purchase anti-suffocation pillows, which can potentially reduce the risk of SUDEP (Sudden Unexplained Death In Epilepsy).
With these pillows are their first priority but cost around £47.94 each and at a recommendation of 2 per child, but as you can imagine families are finding it hard at this present time.
CAN YOU HELP?
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